There are ongoing discussions among healthcare leaders about the need to integrate behavioral health data into primary care to improve quality of care. Two health information exchanges (HIEs) in Colorado have been working on behavioral health information integration projects and shared their initial progress during a webinar conducted by The Substance Abuse and Mental Health Services Administration (SAMHSA) and the Office of the National Coordinator for Health Information Technology (ONC).
According to a SAMHSA 2011 national survey, 45.6 million American adults, nearly one in five, suffer from mental illness, and 8 million Americans have a substance abuse disorder. In addition, 29 percent of all people with a physical health condition also have a behavioral health condition; conversely, 68 percent of adults with a mental illness have at least one medical condition.
Many healthcare leaders argue that behavioral health information, such as medical history, lab results, medication lists and treatment plans, needs to be accessible in electronic exchange as the lack of that information in a person’s health record can put them at risk, potentially leading a provider to prescribe treatment that compromises the person’s safety or disrupts their recovery.
Kenneth Salyards, information management specialist at SAMHSA, said there are concerns about sharing behavioral health data due to ongoing bias and stigma regarding mental health or substance abuse problems. “It’s important that individuals retain the right to choose whether to disclose behavioral health data. HIEs can facilitate that,” he said.
A SAMHSA HIE survey indicates that many HIEs are beginning to integrate behavioral health data into HIEs, yet only 25 percent of HIE respondents are now electronically sharing data subject to 42 CFR Part 2 (alcohol and drug abuse patient records).
There are a number of federal and state laws governing the disclosure and exchange of sensitive health information. The Health Insurance Portability and Accountability Act of 1996 (HIPAA) regulates the use and disclosure of Protected Health Information (PHI) and there are special privacy protections afforded to alcohol and drug abuse patient records by 42 Code of Federal Regulations (CFR) Part 2. Information protected by 42 CFR Part 2, which is information that identifies a patient as having a drug or alcohol problem, requires patient consent for disclosure.
The ability to handle patient consent electronically is one critical issue with sharing behavioral health data, and, according to the SAMHSA HIE survey, more than 50 percent of HIE respondents reported the capacity to handle consent management electronically, Salyards said.
As outlined during the webinar, there are two HIEs in Colorado, the Colorado Regional Health Information Organization (CORHIO) and the Quality Health Network (QHN), that are working to integrate behavioral health information into their HIE systems.
THE CORHIO HIE connects 49 hospitals, with 10 more on the way, and 2,700-plus providers and has 4 million patients in the community health record. According to Toria Thompson, behavioral health information exchange coordinator at CORHIO, the HIE conducted a two-year study into the barriers and opportunities for exchanging behavioral health data and issued the results of that study in 2012.
A number of recommendations came out of that report, such as including the behavioral health community in the development of a statewide health information exchange and supporting public policy to address barriers to information sharing, Thompson said. And, those recommendations have laid the framework and groundwork for CORHIO’s work in the past three years and moving forward.
Working with the behavioral health community, CORHIO advocated for changes to state statute to align Colorado state law with the federal law. “This revision allowed mental health professionals to follow the information sharing best practices utilized by their colleagues in the medical profession,” Thompson said.
One key recommendation of the report was to modify CORHIO’s HIE operations to develop a granular consent model and enable consumer access to treatment data available within the exchange.
CORHIO and QHN are both currently working on pilot projects to test two different models for adding patient consent and sharing behavioral health data in HIEs with funding from an ONC grant through the Advance Interoperable Health Information Exchange Program.
The challenge of this project, Thompson said, was adding consent-based exchange to a HIPAA-based HIE.
CORHIO is currently in Phase 1 in building the architecture for a model adding patient-managed consent into the HIE. The model calls for a separate repository for protected, non-HIPAA shareable data from substance abuse treatment providers and community mental health centers, yet that data would be shareable only via consent, which is managed through a Patient Consent Portal. That data could then be redacted or shared based on patient consent as health records are exchanged with the CORHIO Provider Portal, Patient Care 360, which connects to the community health record.
In Western Colorado, QHN is taking a different approach to integrate behavioral health data into its HIE, according to Jane Foster, QHN clinical director. QHN is currently working on project with Mind Springs Health, a regional behavioral health organization providing services at 13 locations. The goal of the project is to securely exchange Mind Springs Health’s continuity of care documents (CCDs) and integrate them into the QHN patient longitudinal health records via a sequestered repository, Foster said.